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  #21  
Old 02-07-2010, 10:11 PM
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Thanks to all for the well wishes. There will be two Dr's doing the surgery...Dr. Ulrich Batzdorf and Dr. Langston Holly. Dr. Batzdorf is really the guru on Syringomyelia, but he is around 75 years old, so he has been mentoring Dr. Holly over the past 15 years. Dr. Holly is a very accomplished Neurosurgeon at UCLA Med. I was lucky enough to come across Dr. Batzdorf's name while researching my symptoms on the internet. He has really dedicated his life to this rare disorder which is why he really took an interest in my case when I sent him all of my MRI's, CTs, etc. I really am lucky that I found the best in this case.

I've had a lot of surgeries during my short life so far, but this one is the worst. Not just for the seriousness of doing surgery around the spinal cord, but more because I will not be able to pick up my little boy for three months. Doc says I shouldn't lift anything more than my toothbrush for that timeframe. The hard part is trying to keep the pressure in the spinal canal down so that it can heal up without leaking. I know how important this is because my last surgery I had a spinal headache (after the epidural puncture) for an entire month after surgery. Even two blood patches didn't fix the leak in my spinal column. It was miserable...if I lifted my head off the pillow at all, I had the equivalent (or maybe even worse) of a migrane headache for a month. It was worse than the hip replacement!!!

Anyway...thanks again for all of the offers of help. I may be calling, but hopefully I'll just chill for a few months and just get fat!!!

Hope to see y'all soon.

P
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Old 02-07-2010, 11:30 PM
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Best wishes for you Paul
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  #23  
Old 02-08-2010, 06:55 AM
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Sounds like you have had more than your share of medical issues. We will be offering prayers for a speedy recovery. Terry
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  #24  
Old 02-08-2010, 07:35 AM
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Sounds like you have the right people looking after you.
Best wishes for a successful surgery and speedy recovery.
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Old 02-08-2010, 10:36 AM
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WOW, hope it goes well and good luck with the recovery
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Old 02-08-2010, 10:42 AM
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Good luck, Paul. We'll keep you in our prayers.
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  #27  
Old 02-08-2010, 10:50 AM
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In my prayers!
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  #28  
Old 02-28-2010, 04:11 PM
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Well...I'm home in Denver three days ahead of time!!! They released me yesterday, and I just really wanted to be home and Cary really needed to be home to properly care for her now TWO BABIES!!!

Surgery was on Monday, Feb 22nd. Surgery was supposed to start at noon and be three hours long. Turned out things were not as easy as the MRI had suggested...I went into surgery at 2:30PM and didn't get out until around 8PM. The Arachnoid Web (Cyst) was much larger than expected and was "stronger" than any they had come across so far. It was about the size of my index finger and was almost completely flattening out my spinal cord. Needless to say, if I hadn't done something, I would have been paraplegic within a couple of years. The surgery took so long because the cyst was adhered to the cord from pushing against it so they had to leave about 5% of the cyst attached to the cord. I'm glad they didn't go "messing" with this. They are unsure of what the long term affects of leaving this piece of the cyst attached, but feel it will naturally de-laminate over time and will at least allow the cord to de-compress and gain function back.

During the surgery they attached electrodes to my skull and other parts of my body and took electrical readings before, during and after. These readings drastically improved which means the conduction through my spinal cord was increased by the surgery. This is good news!!! While there is no guarantee of re-gaining function, I am hopeful with this type of data.

Thanks for the prayers! So far they are working!

Now, on to healing and getting strong again.

Paul
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  #29  
Old 02-28-2010, 04:18 PM
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Oh my! Paul, you have been in my familys prayers. It sounds like things went well considering the difficult procedure. You swift and complete healing will continue to be in our thoughts and prayers! Good luck Amigo and of course the offer still stands for ANY help I can provide!
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  #30  
Old 02-28-2010, 04:32 PM
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speedy recovery my friend...
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